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Published January 1, 2024

Community and Interculturality in Dialogue

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Editorial Salud, Ciencia y Tecnología


Community and Interculturality in Dialogue

ISSN-L: 3008-7570

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Introduction: The United Kingdom Rare Diseases Framework, published in 2021, addresses the lack of diversity in rare disease research, particularly in clinical trials, due to intersecting issues related to rare disease symptoms and health inequalities. The framework outlines the government's commitment to improving the lives of the 3.5 million people living with rare conditions in the United Kingdom.
Objective: The primary objective is to advance equality, diversity, and inclusion in research by developing innovative methods to engage with communities, establish trust, and enhance the participation and voices of underrepresented and underserved communities.
Methods: The conference was held in May 2023, bringing together voices with lived experiences from rare and diverse communities to meet and discuss with established researchers, policy influencers and advocates. The evaluation design was developed using the Program Logic Model and utilised a conference evaluation form on barriers to inclusion.
Results: The Rare Disease Community identifies disability as the primary obstacle to inclusion. Social Care and Public Health Communities and Clinical Research Communities identified a need for more cultural competency. The Diverse Community selected psychosocial issues, and the Academic Community identified funding as the most significant barrier.
Conclusions: The Community of Practice workshops showed the variety of lived experiences and potential barriers people confront for inclusion in research. Listening to individual viewpoints was crucial to creating or repairing community trust. The Academic Community felt that research funders and ethics review boards must adapt their institutional practices to include financial resources for outreach and participation in research design.

2023-12-31 Reviews
Healthcare Disparities and Cultural Factors in India and Argentina

By Tania Marleni Reyes Carrasco, Jennifer Soledad Maisares, Brigitte Sthefanny Lecca Egusquiza, Briggite Fiorella Lecca Egusquiza, Ana Cochi Sarzo, Gladys Norma Vargas

This scientific text explores the healthcare systems, cultural factors, and health challenges in the Republic of India and Argentina. It begins by emphasizing the importance of understanding how disease is perceived and experienced differently by individuals due to cultural and socioeconomic factors. It highlights that people's definitions of health and illness influence their healthcare-seeking behavior. The text provides insights into India's complex social and economic landscape, characterized by significant diversity in language, religion, and caste. Despite its economic growth, India faces challenges such as poverty, illiteracy, malnutrition, and gender inequality. These factors contribute to a high burden of noncommunicable diseases, respiratory infections, and other health issues. The healthcare system in India is described as a mix of public and private providers, with access to quality care often determined by one's economic status. Comparatively, the Argentine healthcare system is discussed, which includes public, private, and prepaid sectors. Argentina's constitution guarantees access to healthcare as a fundamental right, and public expenditure on health is used to provide free coverage with easy access for the population. The text concludes by emphasizing the importance of addressing health disparities and improving healthcare access, particularly for vulnerable populations. It underscores the role of nursing professionals in providing culturally sensitive care and facilitating effective communication to enhance patient outcomes.

2023-12-25 Short communications
Perception of illness and death in the nursing setting

By Ramona Cristina Radaelli, Esmeralda Marina Quipildor

This paper delves into how nurses perceive illness and death and how it impacts their daily practice. Nurses' perceptions are shaped by their educational background, professional experience, personal beliefs, and cultural context. They receive training in disease management and palliative care, providing them with the knowledge to approach these situations professionally. However, personal experiences, beliefs, and emotions also influence their response. The evolution of medical science has led to the medicalization of death, with nurses often caring for dying patients in hospital settings. The emotional burden on nurses necessitates emotional self-awareness and support networks to manage stress and trauma effectively. Cultural influences play a significant role in how nurses perceive illness and death. Some cultures avoid open discussions about death, creating communication barriers. Nurses must develop culturally sensitive communication skills to provide respectful care. Various medical traditions, such as Western medicine, Traditional Chinese Medicine, and Indigenous medicine, offer different perspectives on illness and death. Cultural differences extend to funeral practices and beliefs about the afterlife. Anonymous interviews with nurses highlighted their diverse responses to death and the emotional toll it can take. Support programs and psychological assistance should be available to help nurses cope with these challenges. In conclusion, nurses' perceptions of illness and death are multifaceted, influenced by education, experience, personal beliefs, and culture. Emotional management and institutional support are crucial for effective patient care. Creating an environment that encourages open communication and respect for these issues is essential. Nurses must engage in ongoing self-reflection to provide compassionate care and address the complex emotional aspects of their profession.

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